Friday, April 26, 2013
Monday, April 15, 2013
I've always been told that good things come to those who wait. I have done an awful lot of waiting the past year and a half and it always seems like I just get bad news. Well as most of you know I have been patiently waiting to get in with the pain clinic. I can finally say I got in. They called me this morning and I'm not sure how this is going to affect my life yet. I hate taking medicine especially narcotics but if this place is going to give me some relief then I'm all for it. I'm tired of not being able to move much and being able to go places. I know the pain clinic will still cut down on my going places but I'm hoping it will allow me to be a little more active in life. I will just lay in bed and sleep because I know as long as I'm asleep I won't hurt. But the instance I wake up, BAM! Pain sets in again. Please pray for me as I start this new journey! Thank you!
Friday, April 12, 2013
I'm hoping I will get a call next week about getting into the pain clinic at UAB Highlands. People ask me why I didn't try to get a pain specialist closer to home. Well to answer that question: when I got my paperwork from this clinic and it asked me what medical conditions I have and it listed Interstitial Cystitis, I knew I was in the right spot.
Yesterday, I went for my therapy and we talked a lot about some possibilities. There is a possibility I could have Fibromyalgia and Gastroparesis. Both are connected to IC, so I knew there was a chance to begin with. We tried something new in my therapy and it really seemed to help. She did an instillation of lidocaine. Which means she filled my bladder with a lidocaine solution. It helped tons! I was pain free for 30 minutes!
Today I started the Lupron Depot. This will put my body in temporary menopause and is supposed to help my endometriosis. FMLA(Family Medical Leave Act) paperwork is finally in and filled out. I do have limitations now. No more night shift and my shifts have been
cut to 6 hour shifts. Speaking of work I have to work a few hours this evening so I'm off to take me a nap. I haven't been sleeping well at night. Hope everyone has a great evening!
Tuesday, April 9, 2013
I have an analogy. There is this puppy at your feet and you have a burger and french fries in your hand. Well this puppy has the cutest look on his face and so you reach down and pet him. Now that puppy has it in his mind that he is going to get some table scraps. But then you don't give the puppy anything. That is pure torture to that puppy.
This is what I feel when there is food around me that I want and can't have. It is pure torture to me. I want so badly to eat the things I used to eat. I will defeat this one day and will be able to eat things not all the time but rationally. I need strength to get through it. I can still taste a Dr. Pepper when I see one. But one day there will be a cure and I WILL be normal again!