Friday, April 12, 2013

Moving Forward

So the past few weeks have been tough. The nausea has been out of control. I've had more trips to the ER than a frequent flyer would. I went 5 times in 10 days to be exact and then I've had a couple more since then. Anyways, I guess the purpose of this post is to get everyone up to date on my medical care. What's being done for me. I am still doing the therapy once a week. And YES, I still love my doctor! She has helped me a ton in trying to figure out what to do next, since my urologist doesn't seem to care. We do know that something else is going on, but we do not know what that something else exactly is.

So I've gotten a few new doctors since the last time I've posted. I've only seen one and I love her! She is my new GI doctor. I really liked her approach on helping me. She isn't worried about the pain right now. She wants to get my nausea under control first and then we will worry about pain. I am taking Reglan 4 times daily and Prilosec twice daily. The Reglan seems to be helping. One thing I really love about this new doctor is she has IC just like me. She understands my pain.

I have a new doctor to go to about my IC. My initial appointment isn't until September 20, but they told me they usually have enough cancellations that will move me up a couple months. I think I can wait that long. I've waited this long. I have heard very good things about this new doctor. He is a chronic pelvic pain specialist and that is exactly what I need.

I'm hoping I will get a call next week about getting into the pain clinic at UAB Highlands. People ask me why I didn't try to get a pain specialist closer to home. Well to answer that question: when I got my paperwork from this clinic and it asked me what medical conditions I have and it listed Interstitial Cystitis, I knew I was in the right spot.

Yesterday, I went for my therapy and we talked a lot about some possibilities. There is a possibility I could have Fibromyalgia and Gastroparesis. Both are connected to IC, so I knew there was a chance to begin with. We tried something new in my therapy and it really seemed to help. She did an instillation of lidocaine. Which means she filled my bladder with a lidocaine solution. It helped tons! I was pain free for 30 minutes!

Today I started the Lupron Depot. This will put my body in temporary menopause and is supposed to help my endometriosis. FMLA(Family Medical Leave Act) paperwork is finally in and filled out. I do have limitations now. No more night shift and my shifts have been
cut to 6 hour shifts. Speaking of work I have to work a few hours this evening so I'm off to take me a nap. I haven't been sleeping well at night. Hope everyone has a great evening!

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