Tuesday, December 24, 2013
So this is Xmas
And what have you done
Another year over
And a new one just begun
And so this is Xmas
I hope you have fun
The near and the dear one
The old and the young
A very Merry Xmas
And a happy New Year
Let's hope it's a good one
Without any fear
I like these lyrics cause he's(John Lennon) is asking you to review your year. What have you done with your year. In my year, I have found the help I need to battle this disease. I love the part "A very Merry Christmas and a Happy New Year. Let's hope it's a good one without any fear" I'm going into 2014 without any fear in my life. I know God will take care of me. I know he will handle my disease.
War is over, if you want it
War is over now
Like I said I know this song is about a protest against the Vietnam war, but I'm taking these words out of context. I think John Lennon is talking about any war. A war with yourself, a war against a disease, a physical war. But any war can be over if you want it to be. We just have to give it to God. My war is over. My dad just said something really inspiring. "You've declared victory" and he's so right! My God is bigger than any old IC or any disease!
Merry Christmas everyone! I'll see you 2014!
Monday, December 16, 2013
Into our singing of praise to God, Mr. George Darling said something powerful. He said that today's society use forms of the word awe too much. Like the word awesome. The definition of awe is "a strong feeling of fear or respect and also wonder" There is a song called "I Stand in Awe" The words are very beautiful.
"You are beautiful beyond description. Too marvelous for words. Too wonderful for comprehension. Like nothing ever seen or heard. Who can grasp Your infinite wisdom? Who can fathom the depths of Your love? You are beautiful beyond description. Majesty enthroned above. And I stand I stand in awe of You. I stand I stand in awe of You. Holy God to whom all praise is due. I stand in awe of You"
You can't say the words about anyone or anything else. I had a bf back in high school and one of the reasons he really caught my attention was one night we were at his church and he said "You shouldn't say the word "Awesome" unless you are talking about God." These words have stuck with me since then. Now I'm just as guilty as anyone else but this song really made me think.
Then our Communion was great too. David Waters talked about sacrifices. He said that everyone has had to make a sacrifice. Some may have had someone or something taken away. I immediately thought about myself. ( HOW selfish, right) Then he talked about what he and his wife went through losing babies. Then he talked about how God gave his only son to save us. How many of us could do that? I know I wouldn't be able to. David gave us time to talk to God ourselves and I just prayed to God thanking him for my disease. Because of my disease it has brought me back closer to Him. I think it was all part of God's plan to get me back to Him.
Next, was the sermon. Sid asked a few people what was their most memorable Christmas gift and why. This young boy, named Erik, came up and said his most memorable was a bicycle. Then Mrs. Monroe came up and told her story about how she didn't get the bike she wanted. But later her parents gave her beat up, old, ugly bicycle. The next part Mrs. Monroe said was "We are NOT victims, but we are survivors." God just kept sending little blessings my way yesterday. Do you know how bad I needed to hear this. So many times I have played the "victim card".
OH poor pitiful me. But I need to embrace the fact that I'm still here. I'm a survivor!
Finally, we need to remember the real reason for Christmas. "Jesus is the reason for the season."
I want to share some lyrics from the song I sang at church last night. It's called "What Child is This?" by Carried Underwood.
"The King of Kings salvation brings. Let loving hearts enthrone Him. Raise, Raise the Son on high. The virgin sings her lullaby. Joy, Joy for Christ is born The Babe, the Son of Mary"
Back to what David said God sacrificed his ONLY son to bring us salvation! I serve an AWESOME God, who loves me unconditionally!
Thursday, December 12, 2013
I went a month with no pain. A month without any pain meds and then I started hurting again. And my depression got worse. Now I've just finished a program to help me with my depression and it worked. And I'm waiting on a referral to another pain clinic in Huntsville. I'm doing bladder treatments every week. And tomorrow I start seeing a nutritionist. Can't wait to start eating right!
Tuesday, December 10, 2013
"I Hope You Dance"
Tuesday, December 3, 2013
Today we talked about letting it be. When something bad happens, sometimes there is NOTHING you can do about it so you just have to let it be. "And when the night is cloudy there is still a light that shines on me Shine until tomorrow, let it be" That light to me is God!
When something bad happens to you, God is not surprised. That event was all apart of his blue print for your life. So if God is not surprised, neither should you. You should just let it be.
I know this post is short but that's all I have today! Please remember me in your prayers. I'm having a bad flare but thankfully I got to see my doctor. Thank God, Alex Childs genuinely cares about his patients. I hope you all have a great and blessed night or day depending on when you read this! And as always Thank you for your support! Praying for a cure!
Of course I have a link to Let It Be
Monday, December 2, 2013
That's all I have for tonight. I hope everyone has a good night or day whenever you read this. Thank you for your continued support!
Friday, November 29, 2013
The first song is called "Firework" by Katy Perry. This song helps you feel a sense of worth. "You don't have to feel like a waste of space You're original, cannot be replaced If you only knew what the future holds After a hurricane comes a rainbow Maybe you're reason why all the doors are closed So you could open one that leads you to the perfect road Like a lightning bolt, your heart will glow And when it's time, you'll know You just gotta ignite the light and let it shine Just own the night like the 4th of July Cause baby you're a firework Come on, show 'em
what you're worth Make 'em go, oh, oh, oh As you shoot across the sky" Good things tend to follow the bad. I just gotta show people that I believe that I am worth something. I am worthy to live another day. I can NOT be replaced. There is only ONE Kayla Nicole Vaughn with my DNA. I will make it through this rut. Listen to Firework .
The next song is called "Part of Me" by Katy Perry (I'm on a Katy Perry "kick" right now).
I just absolutely love this song. The video suggests its about a girl who stands up to her bf and decides he's not going to rule her life anymore. Well IC, depression, anxiety, and endometriosis are NOT going to rule my life anymore. "You took my light You drained me down But that was then And this is now Now look at me! This is the part of me That you're never gonna ever take away from me, no This is the part of me That you're never gonna ever take away from me, no Throw your sticks and stones, Throw your bombs and blows, But you're not gonna break my soul." IC has drained me emotionally and physically and it took my light, but you know what? I got that light back "I just want to throw my phone away. Find out who is really there for me" There have been so many times I wanted to do this. My disease has shown me that I had some fake friends but I also found out who my true friends are. True friends are rare to find these days.
The next song is "Perfect" by Pink. This is a wonderful song for anyone going through depression. Just want to share some lyrics that really speak to me.
Sunday, November 24, 2013
The first song is called "I Gotta Believe" I've been having a difficult time with depression and after hearing this song, I now know I can't do anything without God. Just wanted to share some lyrics from the song.
"Seems that when I face one thing, another one comes Clouding up my vision, but I can feel the sun. I believe that I can do this; I know that I can win Just as long as I have His love within. I believe I can make it, I can make it though the night. I believe that I can walk on, with my head held high. I believe I am special in every way. But in order to have my victory-I gotta believe. I have to see myself at the finish line."
Powerful words and the music is just as powerful. I can make it through my depression and I can make it through my diseases. I just have to believe that I will see myself at that finish line when there comes a cure.
Here's the link to that song: I Gotta Believe- Yolanda Adams
The next song is called "Words" by Heirline. This song is the opposite of "Sticks and stones can break my bones but words will never hurt me" I think that is the most false statement ever made. I have been hurt many times by words. This is the chorus to the song. "Words Oh their power is real. They can hurt or heal. Can't be touched but you can feel. Words. There is strength in every one. And when all is said and done, Wars are lost and battles won with words"
Words are the most powerful weapon a person can have. The bible tells us to tame our tongues. I had found an acronym that goes along great with this song. Before you say something to someone you need to use this acronym!
T- Is it True?
H- Is it Helpful?
I- Is it Inspiring?
N- Is it Necessary?
K- Is it Kind?
Like I said I've been hurt many times by words. People tell me all the time that the only reason I am sick is because I used to eat Mexican Food so much. It's true that it didn't help my condition. But it did NOT cause my IC. I had no way of knowing that's what I had until I had my surgery. Plus this disease is hereditary. It runs on my dad's side of the family. Another time words hurt me was when I was in the ER one night. The doctor said that I came to the ER for the same thing way too much. I know this doctor and when he says something like to frequent flyers he is implying they are drug addicts just looking for a fix. So when he came back in my room to tell me I had a UTI. I told him I did not appreciate him treating me like a drug addict. I said that if I knew anything else to do besides go to the ER for my pain then I wouldn't be there. I told him yes I come for the same thing every time but it's because I have a chronic condition and I needed help to get rid of pain. He apologized to me and gave me some pain medicine to help with pain.
So words can hurt worse than sticks and stones. I couldn't find a good version of the song. But I'll go ahead and post this version: Words by Heirline
The next song is "Stronger" by Kelly Clarkson. "What doesn't kill you makes you stronger" My IC hasn't killed me. And I'm not going to let it kill me. I will be alive when they come up with a cure. "You think you got the best of me, Think you had the last laugh. Bet you think that everything good is gone. Think you left me broken down" IC WILL NOT WIN THIS! I'm gonna stand a little taller because of this. This is a motivating song. Here's a link to the song: Stronger- Kelly Clarkson
The next song is called "Angel" by Sarah McLachlan. This song is so beautiful. I'm sure everyone has heard it. When I first read the lyrics, I felt like the song was about suicide and couldn't believe we were listening to it in our therapy. But then I read it in a positive way. I just want to share some lyrics from this song. Lyrics that really describe what I'm going through right now.
"Spend all you time waiting for that second chance, For a break that would make it okay. There's always some reason to not feel good enough and it's hard at the end of the day. I need some distractions." Since I was put on Birth Control this has been me. I have feel like I'm a failure at life, that I will never find the man of my dreams, that I will never hold my newborn baby in my arms. And for me, it is so hard at the end of the day. I usually end up crying about something. But I'm "in the arms of the angel" so there is no need for me to feel down about my life. I am in God's arms and I'll never be alone. You can listen to this beautiful song by clicking on this link: Angel - Sarah Mclachlan
Next song is "Roar" by Katy Perry. I absolutely LOVE this song!
This is my theme song right now.
Dancing through the fire
'Cause I am a champion, and you're gonna hear me roar
Louder, louder than a lion
'Cause I am a champion, and you're gonna hear me roar!"
Another song is called "Warrior" by Demi Lovato. I want to share some lyrics and explain how they fit what I'm going through. This song is obviously about a break up, but like I've said before, I am trying my best to break up with IC!
"I need to take back the light inside you stole" I lost a lot of light inside of me when I got sick. I lost a ton of friends.
"You're a criminal And you steal like you're a pro" IC stole my life away from me and I'm trying to get my life back. I should be out having the time of my life. Not worrying if I'm going to have a flare today or how bad my nausea will be.
"All the pain and the truth I wear like a battle wound So ashamed, so confused I was broken and bruised" I have scars physically and emotionally from fighting this disease for two years now. But...
"Now I'm a warrior Now I've got thicker skin I'm a warrior I'm stronger than I've ever been And my armor, is made of steel, you can't get in I'm a warrior And you can never hurt me again"
I'm not going to let this IC defeat me. And I'm not going to let my depression defeat me either. The only person that can make me happy is myself. And I'm going to make myself happy!
You can listen to this song by clicking this link: Warrior by Demi Lovato
The next song is called "Here Comes the Sun" by the Beatles. It's one of my favorite Beatles songs. So beautiful. Here are some of the lyrics.
"Here comes the sun, here comes the sun And I say it's all right"
I am going to get the light back in my life. I will defeat it one day. I just have to keep telling myself that.
"Little darling, it's been a long cold lonely winter Little darling, it feels like years since it's been here Here comes the sun, here comes the sun And I say it's all right" IC is like a winter for someone who doesn't like the cold. Because it can make you a cold, bitter person if you're not careful. I know I wouldn't get out of bed. I slept so much because when I sleep I'm not in pain. But the sun came out for a few weeks and I was able to enjoy it.
"Little darling, the smiles returning to the faces Little darling, it seems like years since it's been here
Here comes the sun, here comes the sun And I say it's all right"
When I was in remission those few weeks, I had a genuine smile on my face. I didn't fake it at all. I was so happy to be pain free for once. I am hopeful that people will see that smile again. And I'm praying that it's soon. There are two versions of this song I would like to share with you. The first one is of course The Beatles version and the other one is The Glee version
The last song I have tonight is "Let it Be" by the Beatles. I'm not Catholic so I don't do the whole mother Mary thing like the Beatles. But I do believe God. So when I listen to this song I think of God. "When I find myself in times of trouble Mother Mary comes to me Speaking words of wisdom, let it be And in my hour of darkness She is standing right in front of me Speaking words of wisdom, let it be Let it be, let it be Let it be, let it be Whisper words of wisdom, let it be"
When I'm in trouble I need to go to God in prayer and ask for his help and he will always be there and when I'm in the dark He will be my light. Jesus said it best "While I am in the world, I am the light of the world." And I just need to learn to let it be.
Here's link to Let It Be
Well that's all for tonight. I'll have some more at a later date. Good night everyone!
Tuesday, July 16, 2013
Tuesday, June 18, 2013
Saturday, June 15, 2013
Since I've been sick, my dad has been there even more for me. He has gone to doctor visits when he could. He has supported me by trying to do my diet with me. He didn't stick to it necessarily but at least he tried. Here lately he has been there for me more than I think I realize. I have recently decided to stop working and apply for disability and he has supported my decision to the fullest.
I don't know where I would be without my daddy. I don't know what I would do without him. He works so hard to be able to provide for his family. I thank God for giving me to the best daddy a girl could ask for. Happy Father's Day Daddy! I love you!
Friday, April 26, 2013
Monday, April 15, 2013
I've always been told that good things come to those who wait. I have done an awful lot of waiting the past year and a half and it always seems like I just get bad news. Well as most of you know I have been patiently waiting to get in with the pain clinic. I can finally say I got in. They called me this morning and I'm not sure how this is going to affect my life yet. I hate taking medicine especially narcotics but if this place is going to give me some relief then I'm all for it. I'm tired of not being able to move much and being able to go places. I know the pain clinic will still cut down on my going places but I'm hoping it will allow me to be a little more active in life. I will just lay in bed and sleep because I know as long as I'm asleep I won't hurt. But the instance I wake up, BAM! Pain sets in again. Please pray for me as I start this new journey! Thank you!
Friday, April 12, 2013
I'm hoping I will get a call next week about getting into the pain clinic at UAB Highlands. People ask me why I didn't try to get a pain specialist closer to home. Well to answer that question: when I got my paperwork from this clinic and it asked me what medical conditions I have and it listed Interstitial Cystitis, I knew I was in the right spot.
Yesterday, I went for my therapy and we talked a lot about some possibilities. There is a possibility I could have Fibromyalgia and Gastroparesis. Both are connected to IC, so I knew there was a chance to begin with. We tried something new in my therapy and it really seemed to help. She did an instillation of lidocaine. Which means she filled my bladder with a lidocaine solution. It helped tons! I was pain free for 30 minutes!
Today I started the Lupron Depot. This will put my body in temporary menopause and is supposed to help my endometriosis. FMLA(Family Medical Leave Act) paperwork is finally in and filled out. I do have limitations now. No more night shift and my shifts have been
cut to 6 hour shifts. Speaking of work I have to work a few hours this evening so I'm off to take me a nap. I haven't been sleeping well at night. Hope everyone has a great evening!
Tuesday, April 9, 2013
I have an analogy. There is this puppy at your feet and you have a burger and french fries in your hand. Well this puppy has the cutest look on his face and so you reach down and pet him. Now that puppy has it in his mind that he is going to get some table scraps. But then you don't give the puppy anything. That is pure torture to that puppy.
This is what I feel when there is food around me that I want and can't have. It is pure torture to me. I want so badly to eat the things I used to eat. I will defeat this one day and will be able to eat things not all the time but rationally. I need strength to get through it. I can still taste a Dr. Pepper when I see one. But one day there will be a cure and I WILL be normal again!
Tuesday, April 2, 2013
Sunday, March 24, 2013
So update on me. As you know I went to my first appointment with my new doctor on March 14. I love my new doctor. Well she is the CRNP but she is so awesome. She is a Beatles fan so we can relate. Another thing we have in common we both wanted to be a forensic pathologist. She is also a Christian. Well after my first appointment I was told to come back in two weeks. Well Friday, I went to Huntsville with my daddy and his friend and I had a really good time. On the way home I started feeling weak and I fell asleep. When I got home I ate a burger and started feeling sicker. A few minutes later I got sick and there was red in the vomit and I ended up at the ER Friday night. Everything checked out good and I was sent home. Well the rest of the weekend I felt ok not good but ok. Sunday I worked and had a pretty good day. I was too busy at work to notice. Monday I woke up very nauseated. and was taking zofran every 6 hours and it wasn't helping. I got sick again later that night and still just felt awful so I talked to my mom and asked her if she would take me to the ER so they could give me Phenergan and also check my kidney function while I'm there. Well everything checked out again. The next morning when I woke up hurting very bad and nauseated again. I called my doctor in Birmingham and asked if I could get in any sooner than two weeks that I was miserable. They told me to be there at 8 am Thursday morning.
Thursday morning, I got there and the CRNP came in and she said that we would go ahead and do the therapy since I was in so much pain. During my appointment she talked to me about what was going on in my life and she told me no wonder I was hurting so bad. After she done I was relaxed and had no pain whatsoever. I stayed this way for ten minutes this time! She did tell me that she could tell that I am getting better but there are some trouble places that we would have to work on.
I talked to her about pain management cause the medicine she gave me wasn't working and it was making me itch. Just making me more miserable. She told me to definitely come of that medicine. I told her that I was given some medicine in the ER and that I was taking it for pain but it wasn't working. This is the plan we came up with. I will keep taking the pain medicine and take it more often until they can get me in with a pain clinic. That will hopefully be this Thursday. I will go for see her every week until I feel like I'm getting better and then I will start going every two weeks or something like that. She told me to keep my appointment with my kidney doctor cause she feels like something else is definitely going on. I go see that doctor on April 1st.
Right now I'm sitting here talking with my mom and my uncle Pete(our walking miracle). I go to work at 6:30 and work all night. I have a busy week ahead of me. I work tonight and tomorrow night and then I got back to work Wednesday night and I get off at 5 and will be on my way to Birmingham for my appointment with the CRNP and hopefully the pain clinic. Then I'll go back to work Saturday night. WOO 4 days this week. I haven't worked more than one day in a while. This week is going to be rough and I'm not gonna lie I am not looking forward to it and I'm a little nervous about it. Working a lot and little sit and schedule change makes my IC so much worse. But hopefully I will be alright. Please say a prayer for me this week! Things are going to get better! Well it is time for me to get ready for work. I hope everyone has a good week!
Wednesday, March 13, 2013
This blog was written over a couple of days. So the timeline is a little off :)
Today(Wednesday) I am experiencing so many emotions but the main one is anger. It has been a terrible past 5 days. So much has happened. I'm so emotional right now it's crazy. Let's start Friday.
Friday morning I got really bad sick again with nausea. I had to take a Phenergan and it knocked me out so i slept most of the day. When I woke up that afternoon my mom told me my family physician's had called and left a message that I have been referred to Dr. Boorgu and my appointment is April 1st. Dr.Boorgu is a kidney doctor. I called Monday and asked the nurse why I was being referred to Dr. Boorgu and she told me that I had an abnormal 24 hour urine test. This didn't tell me anything so I asked her what was abnormal about it and she told me my kidney function is not at the level it is supposed to be at. I think my heart stopped. I was expecting a normal test and nothing like this. But I'm being optimistic. It can't be that bad since my appointment is still two weeks away. That means I don't have to see a doctor stat.
Also on Friday I got a phone call from my local urologist. Wednesday I had dropped off some paperwork for my doctor fill out so I can take Family Medical Leave. On this leave I can still work but if i need to be off because of my serious condition then I can't be punished. It protects my job. When My urologist's office called Friday they had more bad news for me. My doctor will not sign the papers since he has referred me to UAB. So I called my urologist at UAB to see if they would fill out the paperwork. They agreed to it and I faxed it to them on Monday. Well Tuesday I got a phone call from UAB and the nurse told me that my urologist would not authorize family medical leave because all I have is IC. Woah woah woah. All I have is IC? Let me get this straight. I only work one day a week and most of the time I have to call in on that day because I'm in so much pain. I cry every day from pain. I can't eat because I'm so nauseated. I am in the ER every two weeks because I can't take the pain anymore. I am in more pain than 80% of all patients I register at I work. I have a disability and you won't authorize family medical leave because all I have is just IC. IC a chronic inflammation of the bladder disease that can cause pain that can be as bad as stage 4 cancer. And all I have is just IC. Can you say I'm mad? I am IRATE! But I'm not giving up. I have two more doctors to ask to fill out the papers and hopefully one of them will. If not then I don't know what I'm going to do.
Today (Thursday) I headed to Birmingham to meet my pelvic floor therapist. I have so much optimism right now. I really think.this therapy will help. The doctor explained to me how this works and why it is causing pain. She is very good at what she does. And when she was finished I had zero pain. Now of course my pain is back but it's a different pain. Also since the therapist is an actual doctor they will fill out my family medical leave. I was prescribed some new medicine that is placed near where the pain is so it has a better chance of working. I'm so excited about this and so glad the latter part of this post has good news. God has blessed me so much! Thank you so much for all the prayers! I truly think I'm headed in the right direction now!
Saturday, March 9, 2013
The past few days I keep getting super nervous about Thursday, and the closer I get to Thursday the more nervous I get. For those of you who don't know what Thursday is for me: I go see my pelvic floor therapist for the first time. I've haven't done a ton of research on this therapy but I have done a little and asked others what they thought about it. I'm pretty sure it's 12 weeks long. I also know that in order for me to get better I will have to endure a ton of pain. That is why I'm so nervous. I don't understand why someone has to hurt worse in order to get better. Why can't i just be given medicine to help this? I've been through so much pain the past year and I'm so over it. It needs to go away and stay away.
Well I ended up having to take some medicine so I'm off to bed. Hope everyone has a good night! Praying for a cure!
Friday, March 1, 2013
I have experienced so many emotions since I started to get sick. Sometimes I have so much anger that I just sit and cry. Sometimes I am so sad that I sit and cry. Other times I am so happy that I cry. Regardless, I cry frequently. Here lately I've had a lot of anger. I'm so angry with my urologist at UAB. I feel like I don't have a doctor. I've waited a month so far and with 13 more days to go to see my new doctor that my UAB urologist referred me to. I don't have a problem with the waiting. I have a problem with waiting and my doctor not doing anything to treat my IC while I wait. If you don't treat something it just gets worse, and I can tell that I have gotten worse. Blood is being found in my urine now and that's not good. That means my bladder is so inflamed it's bleeding. And my urologist wants to do nothing about it. I feel like they think I'm faking everything. Believe me, my tears are REAL. Some people have asked me if they can just put me in the hospital to help me get better. Sometimes I wish the answer was yes. Maybe then people would take my invisible illness more serious. But you have to meet a certain level to be put in the hospital and since all of my lab work comes back normal, I never meet that criteria. I know there are other IC patients who are much worse than me and I don't see how they do it.
Today is Self-Injury Awareness day. Please pray for those IC patients who have had a hard time dealing with the terrible disease and have hurt themselves. I know what they are going through. And I can tell you that it would be easy for someone to hurt themselves. You get so depressed and you don't feel like things are ever going to get better. You feel like you will never find a doctor who will be able to help you. It gets depressing living like this everyday. For me, just seeing someone eat or drink something I can't have gets me depressed. These sufferers are going through a lot. Self-injury isn't just cutting yourself. These people can get addicted to pain medicine cause they feel that's the only way they will be able to function. That is self injury. The ultimate self injury is taking your own life. Please pray for those struggling that they will realize things will get better one day! Please pray for us to be strong! That we will be able to give all of our pain and worries to God and trust that he will take care of us.
I know this is an IC based blog but also take time to pray for everyone who is struggling with self injury. Pray that God will give them the strength to believe they are special. We are all special in our own ways. I pray these people will feel some worth.
Thursday, February 28, 2013
Thank you, God for another good day! Two days in a row that's unheard of! Today was one of the best days I've had in a while. It started off with watching a few episodes of Criminal Minds. If you know me then you know I love that show. After that, my dad and I went to get new tires for my car. I was proud of myself because I can finally say I did something for my car without having to depend on my parents for the money. Next, me and my dad went to Arby's and enjoyed a delicious roast beef sandwich. Then it was time for a nap :) I LOVE my naps haha. When I woke up, I decided to go karaoke and I do believe that was the best decision I have ever made. I love to sing but the people I sing with are just amazing! I told them tonight that I do believe if I could come karaoke with them every day then I might get rid of this horrible disease. I haven't laughed like I did tonight in a long time. I really enjoyed karaoke tonight! If you guys are reading this, THANK YOU! Today was just an over all awesome day and I'm so thankful for it. I am so blessed! When ever I have a bad day, I'm going to remember this day to help me get through the bad days! I'm just extremely blessed! Have a good night everyone!
Wednesday, February 27, 2013
On Monday, I had a doctor appointment. Like most of my recent doctor appointments it didn't go as expected. I didn't get any answers as to why I'm nauseated. When I told them about my symptoms the first thing they thought was KIDNEY STONE. Imagine that. That's only the hundredth time in a year that they have thought I have had a kidney stone. They did a KUB and it turned out normal.. SURPRISE! Next they did blood work and urine. Blood was normal. In the urine no infection showed up but there was a trace of blood and a trace of protein. The trace of blood is easy to explain. My bladder is so inflamed now it is bleeding. The protein didn't really have an explanation for that. So the nurse practitioner wanted to do a 24 hour urine study. I also told her I thought I needed help with getting through the trauma of all this. I have been depressed quite often since I was diagnosed and even before that with the frustration of not being able to find anything. I had been traumatized and I needed help. So she told me to try Viibryd. So I'm trying that and it will take four to six weeks to take full effect on my body. I will keep you up to date on how that is going too. Yesterday I started my 24 hour urine test. You never realize how much you actually go until you do one of those. I turned it in this morning and got some more blood work done. I'm not sure how long it will take to get results back but hopefully soon.
Today I don't have much plans. Just taking it easy and hanging out with my brother for a while and then going to the gym later Mary. It will be the first time I've felt like going to the gym in over a month. Don't worry I won't over do it. I plan on having a GREAT day! Thanks for all the prayers and kind words! Praying for a cure! maybe 2013 will be the year!
15 days until my next appointment in Birmingham!